THE GRACE IN BEING HUMAN The Beginning Of What Felt Like The End “Ashes” a song by by Celine Dion https://youtu.be/CX11yw6YL1w It has been 5 years since my life and all of the hopes and dreams I had imagined were blown apart. A diagnosis of Multiple Sclerosis and simultaneous relationship and a close friendship (for … Continue reading Life Lessons
medication
Being Present
So it is that time of year again. I begin the follow up rounds chemo treatment in November. I feel prepared. This will be the last for a few more years (or at all). It is amazing how treatments for long term immune conditions are improving. I am wondering what it will bring this time … Continue reading Being Present
Identity
I often reflect on the moment in Alice in Wonderland when the caterpillar asks 'who are you?' It is such a big question. Her reply is "well I'm not sure, I'm not myself you see, I'm not the same person I was when I woke up this morning!" and " How puzzling all these changes are! … Continue reading Identity
In Search of Meaning (i)
It has been an arduous task trying to define most precisely what I have been aiming towards with this work. I have spent many months in a sort of hibernation, tossing and turning towards understanding my real intention here. This is it. Fundamentally I am searching to understand how each of us make meaning of … Continue reading In Search of Meaning (i)
Who Am I?
"But who in the world am I" - Alice In WonderlandIn order to begin exploring the labels that we attach to our sense of identity we must begin by exploring what sense of identity is, asking what is it that 'I' am attached to and the 'stories' given behind that. This is the beginning of … Continue reading Who Am I?
Taking A Step
Very recently a long time friend of mine turned up at the Community Art Studio with the above gifts. A little hand decorated box filled with some shamanic love. I have been lost for words other than thank you for some time. In this past week these have played a beautiful part in preparation for … Continue reading Taking A Step
D-day
Finally today I begun my chemotherapy treatment. It has been a long time in the waiting, many hurdles none of my own making however the day has been and gone the first two pills taken. I have not been one for medicines as previously mentioned but I just have to believe this will make a … Continue reading D-day
Vulnerability
Part of my life turning upside down was learning I have both a rare health condition called Transverse Myelitis as well as Multiple Sclerosis. Neither condition can be cured, the Multiple Sclerosis may or may not get worse and I now need to help sustain my current health by injecting medication. Having been someone whom … Continue reading Vulnerability